Posted 12/8/2007 4:23 AM (GMT -6)
I definately have gastroparesis, and so does my mom. I have Crohn's also, and my mom doesn't. I'm not sure if it's linked to crohn's but my GI didn't seem surprised to find out that I had it. it's hard to find a balance between controlling the gastroparesis and the crohn's. Crohn's seems to make everything go through my system fast, until I eat something that high fat, and then it sits in my stomach for hours!!! I've learned that ifI have a high fat dinner, I'm either going to wake up in the morning feeling gross and still full, or I'm giong to throw it up. I went on a first date with a guy once(actually my now ex-fiance - couldn't handle me being sick) and we had fried fish, frech freis and mozerella sticks for dinner, then I threw it all up at 7 am the next morning. I didn't have the heart to tell him either! so the moral of my story is stick to low fat foods! there are medications you can take for it. reglan (I'm allergic so that's a no for me...I get very agitated....think Linda Blair in the exorcist. not pretty) and zelnorm which was wonderful but the took it off the market for awhile and now there are strong restrictions on who can and can't take it. As long as a watch what I eat, the gastro doesn't bother me so much now.
I didn't mean to write a book. sorry about that. oh well. I don't know if there are studies showing gastro and crohn's being linked but I have them both. Good luck! I hope you can get more info from your doc! if not there are resources online, and I've been learning to deal with Gastroparesis longer than I have crohn's. as you can see, I'm happy to share my experiences. I know that it helps me to hear some talk about what they're going through. it makes me feel not so alone in this whole thing. all these GI things can be frustrating to deal with, and kind of embarassing at time. Good luck!