Most Weight lost

New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 12/9/2007 1:25 PM (GMT -7)   
I just kinda wanted to gauge what type of loss or gain crohn's has done to us. Myself I have gone down in weight a total of 125lbs or 57kgs or 9 stone. What about everyone else?
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 165lbs). On HUMIRA, Prednisone


Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 12/9/2007 2:56 PM (GMT -7)   
I still don't know what "this thing" is, of course, but I used to weigh 165 back in 2005 and now I'm 119. I'll go through relatively stable months and then bam, another five pounds is gone before I even realize it. It was cool at first because I was overweight, but now it's just annoying to keep needing new clothes! I'm starting to shop in the girls' section and I'm 28 years old!

You went down 125 pounds? That is insane! Are you underweight now?
Co-moderator - IBS Forum

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 12/9/2007 3:09 PM (GMT -7)   
Same with me. I was overweight to begin with. Im right at about the average weight for a male at 6foot but I'd like to gain 10lbs more.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 165lbs). On HUMIRA, Prednisone


Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/9/2007 5:35 PM (GMT -7)   
In 2003 when I got real sick I went from 133 pounds down to a 103 in about three weeks time.Then when I got my diagnoses of Crohns I was put on high doses of predinsone and I went from 103 up to 234 pounds.I stayed at this for awhile but then I have been in a flare so I have went from 234 down to 174 since may of this year so that's right at 60 pounds.

Regular Member

Date Joined Nov 2006
Total Posts : 304
   Posted 12/12/2007 8:47 AM (GMT -7)   
I was 260 pds i now weigh in at 135pds, 10 pds up from when i was diagnosed, but the entocort is making it a bit easier to eat...still pain after meals, but not as bad as what it once was...i start imuran today, so we will see how that goes.....
I'm cute. Let's put me in charge.(happy bunny)
 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 omega 3, digestive enzyme, calcium, vit d, flax oil, aloe vera juice, 9mg of entecort
 diagnosed with a CT scan september of 2007.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 12/12/2007 9:41 AM (GMT -7)   
I gain weight when I am sick... I am so lucky mad   unfortunately I eat too much too so not much weight loss for me.


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 12/12/2007 10:28 AM (GMT -7)   
2 weeks ago when I was weighed at my doc's I was 92 lbs......told I had til yesterday to put weight on or be tube fed.....NEVER again so I have been eating like crazy and lots of potatoes would go days w/o eating due to depression and pain more
Cait ( daughter says if I dont eat she wont and I will not have her as a teen with eating problems) so I now weigh 111lbs

I do feel a heck of a lot better at this weight I have to say ............Lesson well learned .......
    Contribute today to support Healing Well Forums...Donate @
  CO-Moderator@ Crohns
  Moderator@ Alzheimer's
DX @ Crohns, Pyoderma Gangrenosum ,Anxiety /Panic
New DX of C.O.P.D.
ON too Many meds to post.........
        We Have Anxiety.....Anxiety Does NOT have Us

Regular Member

Date Joined Nov 2007
Total Posts : 83
   Posted 12/12/2007 10:32 AM (GMT -7)   
I used to be at 115lbs about 3 years ago.. dropped to just over 90lbs - gained back to 105lbs (2 years ago) and now I struggle around 95lbs - I gained 4 lbs last week and then lost them again this week.. I would do (almost) anything to be back at 115lbs!

It's only been a week and a half with meds and proper diagnosis.. so I'm being impatient heh.

24 yrs - female : diagnosed with Crohn's 11/29/07 : 50mg 6mp

"i believe - you can keep going long after you can't"

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 12/12/2007 11:16 AM (GMT -7)   
I'm down to 100 lbs.  My NP got alarmed at 103 and I made an effort to eat more. I stayed at 103 for awhile but one by one the lbs drop off.  I think I eat fine, not a lot different from how I used to eat when I had less problems from this.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

Regular Member

Date Joined Mar 2005
Total Posts : 46
   Posted 12/12/2007 4:59 PM (GMT -7)   
i was 235 lbs about 2 years ago. I am now at between 165 and 170 at any given time. I'm 5'10" so I'm where I need to be as far as weight goes. Just wish i could get this Crohn's under control!!!!!!!!!!!

Regular Member

Date Joined Aug 2006
Total Posts : 177
   Posted 12/12/2007 5:25 PM (GMT -7)   
pre-crohn's  178lbs.
post crohn's  between 140-150lbs.
my weight bounces up and down.
38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 12/12/2007 6:17 PM (GMT -7)   
I was diagnosed this year with CD and they found my small bowel is full of diverticulum. I have lost 35 pounds so far. I seem to be holding at 130... we'll see. I am in the midst of a flare up now. This forum has been a blessing to me. :-) It is good to see that others out in the world are experiencing the same thing I am... felt soooo alone.

40 year-old mother of one
Pentasa x 6 a day
eColi antibiotic and a garden-variety antibiotic
phenagren - not helping much with the nausea
lowest-dosage vicodin - not helping much with the pain
Sedative - so I don't get stressed out like I did with the last flare-up... lasted four weeks!!

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 12/12/2007 8:45 PM (GMT -7)   
To all those women who say that you can't lose cellulite, I say, oh yes you can! My most precipitous weight loss was from 138 to 105 in less than three weeks after my first resection. Tube feeds for six weeks prior had got my weight stabilized and the nutritionists and docs were satisfied that it was safe to do the surgery. I was eating fine and released from hospital five days after surgery and then wham, I developed a walled abscess that went septic. Who would ever believe that you could burn so many calories just laying in bed! Abscesses literally eat you up.

I remember the first time my husband saw me, after my 3 hour emergency ambulance trip from our regional hospital to the teaching hospital where my surgery had been performed. He just looked in horror when I stood up to give him a hug. "Who stole your ass?" he asked. Sticks for legs and no bumps on top.

but then before my next surgery 12 years later, my weight had ballooned to 180. Now I weigh 130, which is on the thin side of just right.

30+ years living with Crohn's.

Veteran Member

Date Joined Jan 2003
Total Posts : 6116
   Posted 12/12/2007 10:39 PM (GMT -7)   
pre sick a healthy 170 and in fine shape.
post sick and 60mgs prednisone for 5 years, 260+
had some problems, down to 130 in 9months to a year
been everywhere in between since
lately hung at 240+ for a couple years now 212 since summer. would like to get 195.
had my TPN adjusted earlier this summer to drop a bit and it seems to be working.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 12/13/2007 5:17 AM (GMT -7)   
Way to go, Howlyncat!!

I'm a 5'9" female and was healthy at 145 and lost 40 pounds while sick with Crohn's. I've been in remission since surgery, so now I'm back to my healthy weight again.
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06. Remission since surgery.
Pain-free, med-free, and very thankful to be healthy again :)

Regular Member

Date Joined Nov 2007
Total Posts : 111
   Posted 12/13/2007 9:10 AM (GMT -7)   
before crohns was about 145-150 and now after 5 hospital stay was down to 123 on 80mg of pred now on humira, sol medrol, pentasa and about 133. wish i could get back down to 123. I seem to lose weight when on no medication and in a flare.

Regular Member

Date Joined Sep 2007
Total Posts : 160
   Posted 12/13/2007 9:32 AM (GMT -7)   
when i was diagnosed in 2004 my weight went down to 84kgs i now weighh 112 but when im relapsing my weight just falls off who needs "slim fast" lol.
i dont even put weight on with steroids 41 and i only weigh 112 good thing is i still fit into kids clothes and its cheaper for me i have a wardrobe in every size lol 8,10,12, but very rarely fit into 12s that was when i was young and healthy lol!those days are long gone im afraid.
Only disadvantage with this chronic disease is because we cant tolerate food at times and suffer from malnutrition we cant keep the weight on when people look at us im sure they think we have anoerxia!
Until you are in postion people looking in from the outside dont fully understand my parents dont even understand me at times!and im 41 lol

Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 12/13/2007 10:46 AM (GMT -7)   
I'm at 103 right now. I do admit, I look pretty sick. I don't like it one bit. I was up to about 118 before this past flare. I was exercising 3-4 times a week, and I had a nice, muscular shape. Now, it's more like a skeleton!

I'm about to start Humira. I'm planning on "fattening up" a little over the Christmas week - if I'm feeling ok. I'm down to only 10 mg of prednisone, so I'm hoping I can stay well enough to get some meat on my bones!
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2007 11:11 AM (GMT -7)   
When I was first diagnosed with Crohns I went from 118 to 93 lbs in less than 3 weeks. I weigh 136 now and am 5'5". I am comfortable right now with my weight and consider myself for the most part to be in remission. But in the past 3-4 months I have lost anywhere between 10-15 lbs. Why who knows, maybe its the low residue diet, and the doc doesn't seem to be too concerned yet. I don't mind it during healthy times if I gain a little weight, I always feel like I like to keep a little cushion weight on. Must be why most of us have a couple different sizes in our closets. LOL

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined May 2006
Total Posts : 167
   Posted 12/13/2007 12:46 PM (GMT -7)   
I'm 5'7.. I was 115lbs a few months ago, I started prednisone in October 5th or so, i'm now 135lbs... I gained 20lbs in 2 months... it's a good thing, but it's bad weight, fat around my belly and upper chest, it's depressing, i'm trying to work it off and into muscle. Prednisone did make me eat more tho, now i'm rarely eating.. lol

Back in 2003 when I was on nothing I went up to 135lbs from 110lbs I ate out more, then got sick and went down to 105lbs. It's a cycle I guess.
Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 7.5mg (tapering), Imuran 150mg, Atenolol 25mg for fast heartbeat (thanks Pred!)
Have used Pentasa, Entocort in the past
Have a safe and happy holiday everyone!

Regular Member

Date Joined Oct 2006
Total Posts : 367
   Posted 12/13/2007 5:12 PM (GMT -7)   
Wow. I don't feel right about posting after reading all of your responses! In high school I hovered around 98 lbs--I was naturally thin. I ate three honeybuns every morning for breakfast. Years later when I found out I was pregnant (before dx, but after first symptoms) I was down to 92 lbs. I was never one to fluctuate, so this seemed a bit odd.

When I'm healthy, I stay around 98, but last Christmas I was down to 88. Not pretty! I was a skeleton! This summer was an exceptionally healthy summer and I managed to hit 100 lbs for the first time in my life! My nurse and I jumped around the office hugging everyone--no joke.

Now, my health is fading a bit, and I think my weight is starting to go with it. (But what can I expect when the only thing I can keep down is frosted flakes?)

Forum Moderator

Date Joined Nov 2003
Total Posts : 7119
   Posted 12/13/2007 5:33 PM (GMT -7)   
Prior to diagnosis I was obese at 185 lbs. Over the next 3 years I lost 63 pounds without trying. I am now height/weight proportionate for the first time in 30 years.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 12/14/2007 1:14 AM (GMT -7)   
when first diagnosed , would easily lose 45 pounds in less than 3 weeks. I still lose a lot of weight when I have a bad flare. When Diagnosed I weighed 110pouds at 5'9" tall, Now I weigh 190 since my "MS" attack 4 years ago and the use of a scooter to get around.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Jun 2006
Total Posts : 289
   Posted 12/14/2007 5:26 AM (GMT -7)   
Before last years flare, I averaged 140. Then I lost some weight, but once the steroids kicked in, I went up to an all time hight of 180. After getting off the steroids, my weight has moderated. Now, I'm at about 160, but would still like to get back to 140.
Current Medications:

Pentssa, 1000 mg qid
Vitamin B Complex
Trader Joe's Probiotic
Folic Acid
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 12/14/2007 7:45 AM (GMT -7)   
Here's a good one: the other day, before my gastroenteritis slammed me to the ground, I weighed 119. Within two days of D non-stop (think: scope prep on steroids!), I went to 115. They gave me three liters of IV fluids and now I'm 123! HOLY COW! Amazing what a little water weight will do...
Co-moderator - IBS Forum

New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, November 17, 2017 9:51 PM (GMT -7)
There are a total of 2,894,975 posts in 317,755 threads.
View Active Threads

Who's Online
This forum has 157354 registered members. Please welcome our newest member, AndyB80.
306 Guest(s), 4 Registered Member(s) are currently online.  Details
Im_Patient, Scots, Girlie, Pratoman

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.