Probiotics are good. I take acidopholis myself. I get many yeast infections although I had more when I was on Imuran...about
1 a month when on Imuran. I had a resection in February when my Ileum perforated then 1/3rd of my colon didnt wake up so 1 week later I had emergency surgery again. this time it was a partial colectomy and a temp ileostomy. This surgery also came with complications. One of the reisdents was moronic and got feces in my incision from the stoma 2 times. I said to her dont you need to flush that out with sterile saline, she responded by dabbing the incision with regular gauze and said that will be ok. Well her being stupid not only made me ban her from my hospital room but it also got me a wound vac and a lovely bill from the wound vac company since my insurance only covers a certain amount for "durable medical equipment" per year. The stoma did not heal right on me so feces was going back into my abdomen by getting under the skin where the stoma wasnt healed right around teh skin. This got me many CT scans and a couple of pig tail drains placed as well as the abscess making a fistula to the incision and the stoma. I had to flush the abscess drain daily and had to flush sterile saline into the abscess by changing the flow on the stop-cock then turn it back to allow that saline to flow into the bag. When I would fluch it the saline would come out of the incision...pus was being sucked out by the vac too but when the vac was removed when flushing the saline would drain from a little hole at the bottom of the scar. It also would come out of the stoma. I had my reversal 4 months after the Sx since the abscess just would not go away after months of antibiotics and cultures to make sure I was on the right ABs. The reversal had the reconnection, more of both intestines was removed, abscess was removed and from the abscess all of my abdominal walls were infected so they had to be scraped of the infected tissue, and they found many adhesions that had to be taken care of. I now have had the CD return and now have this fistula that wont go away witout surgery I have tried all other treatments.
I wish that the Pentasa would ahve kept my CD away post op but it just was not in the cards for me. Luckily I have not had bloody stool in 20years when I was first diagnosed. When I flare now I am lucky to not bleed, I do have thrombosed hemmies and the occassional hemmies and superficial fissures around my anus that do bleed. Even though I have not had blood in my stool etc I still needed transfusions this year too after one of my surgeries I think I had 2 pints again. Back in 99 my Gall Bladder was ready to burst and since I was on Imuran it masked my symptoms and made it appear as if I had menengitis. My blood levels were so bad I needed 5 bags of Plasma before they could perform Sx to remove it since my blood would not clot.
To this day I am anemic but for about
5-7 years or so I was not anemic I did not need B12 injections for a while either but I am back on those. Make sure you tell your doc about
the bleeding how many times a day you have a BM and out of those times how often you see blood. They will want to know the color of it, if it is diarrhea or loose or formed. They will want to know if you have to strain to pass it etc. They may even want an estimate of how much blood you see. Again they will want to know the color of the blood. The doc may want you to go to the hospital, go to see your doc asap or have some labs drawn depending on how much blood and how often you are seeing it. You should also monitor what you are eating, how often you have a bm as well as the time you eat, have a bm etc. that will help your doc determine if you need the ER, a visit with the doc, or some labs the severity of blood and fluid loss will determine that. I hope you feel better soon
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987