So sorry to hear about
what is going on. As far as scared about
reacting to Humira I told them at the office about
my heart arrythmia and tachycardia that occurs when on remicade to me. I also had one time when I got dizzy etc. When you get your loading dose of Humira it is done at the GI's office so that the nurse there can show you how to give yourself the shot.
Also me telling her about
my reaction to remicade they made me stay in the office for a good 30 - 45 minutes after the injections and they had me sit in a chair right outside of the dr's offices where the different GI's nurses would walk by often plus the nurse alert
ed me to where she was in case I needed her. Every 5 mins or so she would come out and check on me and she did my vitrals prior to injections, immediately following 15 mins after injections and before letting me leave the office. Since your reaction to remicade was much more severe than mine I am sure they would keep a very good eye on you. In total I think I was at the office a good 90 minutes or so. They do not need to premed me before my humira where as I needed benadryl, tylenol and 2 days of high dose pred the day before and day of my remicade infusion to try to lessen my reaction. I still had the tachycardia and arrythmia. I am tachycardic all of the time but it got very high about
130 my norm is about
107. Remicade also gave me chest pain so severe they almost rushed me to the ER a couple of times. I was on remicade 4 years before I started to get reactions.
The only issues I have with HUmira is local bruising, I use my legs since you are not supposed to give the shot within 2 inches of scars, belly button, stretch marks, or
open wounds so the nurse saw my belly fistula and all and decided I dont have room on my stomach to give the shots to myself. The pens I found I tensed up a lot more than when I use the syringes. The loading dose kit is not available in the syringes though. With myself tensing up so much I would get bad headaches. I still do get the occasional headache from the humira but not like the weeklong migraine I would get each time I had remicade. Also there is no need to try and get a vein which is good on me since I have the worst veins ever. I even had my jugular vein collapse on the ER doc in mid november. I also would get bad joint pains about
1 week after the infusion so bad that i could not sleep. I do not have that issue with humira.
Hopefully this will help you as ithas helped me.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987