2nd Opinion and questions for doctor

Thanks to everyone for your input on my first post.  My wife read them with me and we both thought this site is awesome.  So I thought I would ask two more questions:

 

1.  Do you thinks it is necessary for a second opinion aftering being diagnosed with chrones?  I have had colonoscopy said everything looked fine; had a small bowel follow thru and they said everything looked okay, had an upper endoscope and they said they found abnormalities in some villia and they suspected siliac disease and wanted to do a pill endscope (where I swallow the camera) the results they said was crones in my small intesine.  So just curious should I seek second opinion.

 

2.  What all types of questions do you think I should be asking when I got back on the 19th to talk to the doctor about the results?  They already stuck me on 500 mg of Pentasa 6 times a day.  That has been about two weeks ago and nothing has seemed to change.

 

Any input would be greatly appreciated.  Thank you. 

Please be aware that if you are going to have additional tests for celiac disease, you need to be eating gluten everyday. there are blood tests they might want to run. but the endoscopy is definitive if you respond to the diet, like Sarita says. You need to give the diet at least 3 weeks and avoid wheat, barley and rye gluten.

I have celiac and was just dx recently with crohn's also. They found it the same way you have described colonoscopy and endoscopy, then the pill cam. The pill cam shows them how far the crohn's damage is in the small intestine where they can't reach with their scopes. There should be biopsies that confirm the dx of both.

Definitely get the pathology report and read it for yourself. And if you do have celiac, you'll probably find more info on the internet than from the doctor.

Last time I saw my GI I took a list of all my questions, and she was happy to answer them, whether I thought they were dumb or not. I'm really blessed with this doc.

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Dx with Crohn's Aug 2007; celiac sprue July 2002; Type II diabetes Nov 2006.  Current meds: Entocort , Asacol, Levoxyl, Fosomax, various vitamin supplements.