My name is Josh and I suffer from severe chron's disease, I was diagnoised back in July. I was reffered to my GI by my primary physician who told me these people where great. Upon my first visit with my GI he basically ruled everything out to three possible causes Crohn's, Colitis, or IBS he recomended me to go for a colonoscopy, after getting the procedure done he told me I had Ulcerative Colitis and he prescribed me to take Pentasa (2 tablets, 4 times a day) the doctor informed me that by taking this it would help me out by leaps and bounds, funny it has just made matters worse for me. The doctor had me go for a upper GI, endoscopy, and a CT scan and every time I went for these procedures my GI was the one who performed them and I made sure to tell every time the pentasa is not working for me and it is just making me feel worse he was very dismissive and kept telling me I needed to stay on it. Now his intial diagnosis was Ulcerative Colitis after colonoscopy every test he did he said there was nothing wrong with me and he cleared me off Ulcerative Colitis and he chalked it up to being IBS but still had me taking Pentasa. Now after the last procedure which was the endoscopy, I decided to stop taking the pentasa as it was just making me feel even worse, I tried to consult the GI on many occasions but he was very dissmissive and would not listen to me. I noticed I went to feeling better after stopping the pentasa and than about
a week later my symptoms got worse. I went back for a follow up and I ended up seeing his assistant who handles his apointments when he is not in the office, I explained to her that I stopped taking the pentasa and why and she became upset with me and told me I set my treatment back weeks, maybe months, and I asked her what exactly is wrong with me, she told me I had crohn's disease. No for the past 3 months the GI knew I had Crhon's but never informed me he kept telling me I was fine.
I am back on the Pentasa and still it just makes me feel worse my GI is telling me that it is the only thing on the market right now that can treat it, she has no anwsers for me when I ask her why I feel worse taking Pentasa and she continues to make me take it. At this point I feel very hopeless, I have noticed I have become depressed, and I have even comptiplated commiting suicide to escape this (I know that is not the choice and I would never go through with it). I feel like I am prisoner, my quality of life has greatly decreased.
I guess my questions are this.
1) Is Pentasa the only medicine that can treat Crohn's?
2) Should I seek a second opinion?
I have to go for blood work and a ct scan this Monday, I really do not want to do it as these tests where performed and I know the GI is going to stay we can not find anything all it is inflamation and the Pentasa will help, any help would be greatly appreciated.
Post Edited (Joshuaam82) : 12/14/2007 8:36:16 AM (GMT-7)