just frustrated

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Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 12/16/2007 12:35 PM (GMT -7)   
We absolutely can not get things under control, the harder we try the sicker I get.
Thanks to the steroids I'm now mildly diabetic and I was so shocked by this news I failed to even ask my doctor if this is reversible thing...I was never even told that diabetes would be a concern while I'm on them!! Not that I had many choices in the matter anyhow. I look so bad, my face is gigantic, i have a crazy neck hump thing, and I've gained 20+ pounds while on this crap.
It's just frustrating and I'm tired of dealing with the side effects.
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Methylpred 40 mg a day.


Forum Moderator

Date Joined Mar 2003
Total Posts : 10405
   Posted 12/16/2007 1:03 PM (GMT -7)   
Kandi, this is a good reason to always look up your meds for yourself. We're seldom warned of all the possible side effects.

On the plus side, I had mild diabetes by lab when I was on steroids. Since I've been off, my labs have all been in the normal range. In the meantime, diet and exercise may well control your blood sugar well.

I understand your shock, though. This was the point at which I requested anti-depressants. One more diagnosis was just more than I could take!
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade. In remission since April, 2006. Remicade has been my wonder drug.

Veteran Member

Date Joined Nov 2007
Total Posts : 4363
   Posted 12/16/2007 3:12 PM (GMT -7)   
So sorry you have to go thru all of this. Maybe it's time for a second opinion on your medications??
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/16/2007 4:28 PM (GMT -7)   
Hi my sugar was getting border line for diab. my last blood test came out good so I can understand how you feel. Has the DR. put you on meds or do you just have to cut back on sweets, that was what I didwas cut back on sweets. I also felt one more thing was too much and did get a little depressed. It does sound like you need more meds though if the pred. isn't controlling the CD I am not the greatest on it now been having some bad bouts. Hope things get improved for you .lol gail

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/16/2007 7:43 PM (GMT -7)   
I know were you are coming from,I had induced diabetes while I was on prednisone but once I came off of them my diabetes went away.So hang in there it will get better.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/17/2007 7:38 AM (GMT -7)   
Aren't steroids just the cats meow? NOT!!! I really hate them and what they have done to my bones. Hopefully like the others have said your sugar levels will go back to normal once you are off the evil Pred. Feel better!!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 12/17/2007 7:53 AM (GMT -7)   
I am so sorry that the side effects are taking such a toll on you...wish i could help but know that you are in my thoughts...hang in there!
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia

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