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Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted Yesterday 8:28 AM (GMT -7)   
Back in hospital for THIRD time in three weeks.
First time through Accident and emergency cos crohns diarrea had gone out of control and I felt - crap - scuse pun.
Doc did scope and CT, showed nothing fantastic, and all bloods were fine, now remember i told you this guy felt all my probs were 'in the mind' well this time he said I was somatizing.
BUT the biopsies from the scope came back showing the crohns was more active than a year ago.
My GP and I were vindicated. He put me on stronger steroids.
I also saw a rheumatologist cos it was found I had sjogrens when I was in London but he went completely AWOL, I left the hospital in dressing gown, he left the country and I made a complaint.
He was SO rude at my bed side the first time I asked for a nurse to be present the second and he didnt like that and lost it.
I was in for an overview of my whole situation and he shouted and screamed "And when we get the muscle biopsy back we will PROVE nothing is wrong' and stormed out.
As I am on a heck of alot of steroids I doubt that anything will show on the muscle biopsy and also I think thats why the bloods were good, cos they masked the inflammatory processes.
The first doc said I was far too sick for crohns alone and didnt know what to do so I left again but couldnt manage at home, I simply thought i would die, so came back in.
I am now going to be reassessed by a professor of neuro. I am happy about that as I believe he is a nice man.
Also the guy in London is contacting the gastro this evening.
I am feel so unwell,
ice on feet hands and behind neck and a fan.
I feel feverish all the time yet no temperature. My feet and hands are on fire and I am drowning in artificial tears and saliva and have a very dry cough.
I was told in London that I had sjogren's.
I was also told I may have Hughes syndrome but a course of heparin injections did little so that was a disapointment as Prof. Hughes says he was sure I had it and has seen wonders.
i am still trying to get the the Louise Coote Unit in London for a further appraisal of my autoimmune conditions.
Docs here are prejudiced against my history of being in the psych system.
My bloods are hardly every good with the gp.
Oh can you tell me anyone would steroids mask blood results.
I would be most grateful if the moderator of this could actually tell me to put on the lupus site, I really would, as I dont have the energy to type a second time and I believe one can
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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