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Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 12/19/2007 7:49 AM (GMT -7)   
Had my annual visit with the GI, plus a scope tomorrow, but he is really pushing the VSL3 route and says he has actually had some CD patients who were able to go fully off other meds while using this probiotic. I will remain on 50mg of 6mp but add the VSL3 daily and see where we are in six months. My symptoms (I am nnild-to-moderate Crohn's) have not been heavy in recent years, but small breakthrough flares still occur, and scopes have consistently shown some minor ulceration in the cecum and inflammation in the terminal ileum -- about what I expect to see again in tomorrow's scope.
So what are your experiences with VSL3? I know it ahs actually been used in at least one clinical trial and is the only probiiotic I have seen information on that seems to show some medically tested and evaluated improvement in most patients.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2007 7:59 AM (GMT -7)   
I haven't used it, but have heard others that have had alot of success with it. BUT......I also heard that you can get other probiotics to work just as well and at a lesser cost. PB4 uses one by I believe by Natures Way, (can't remember name) that she has had great success with and at a much lower cost. I 'll be interested to hear how it works for you. Keep us posted.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 12/19/2007 8:08 AM (GMT -7)   
Wow...I wish we had your GI. That's wonderful he is willing to prescribe probiotics!

I can't speak to VSL, but we do use another very potent probiotic and I believe it has made a BIG difference. I've called local drug stores and have located VSL, so it may be in our future. I was pleasantly surprised, as is isn't as costly as I'd expected.

Best of luck! I hope it really, really helps!

Grateful for everyone's help here!

Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium and a good multivitamin.

Started The Maker's Diet in early September.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 12/19/2007 6:06 PM (GMT -7)   
i've heard a lot of good stuff about vsl 3 from those who take it. i've never tried it but plan to some time soon. i've used primal defense, primal defense ultra, Th1-s and soon i'll be giving complete pribiotics a try (it is recommended by dr. mercola - check out his website).

i got off all my meds almost 2 months ago using probiotics and other supplements and maintaining a strict diet.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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