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Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 12/19/2007 10:16 AM (GMT -7)   
My hair has been a real disaster lately.  Either from all the meds or just being sick, a lot of it fell out.  And what didn't fall out was weird and frizzy and dry.  What fell out has started to grow back, so I have lots of strange, wirey hair about and inch and a half long sprouting out among the "normal" stuff.  And I've started to go gray, too.  So basically, my head's been a mess.  Last night I just couldn't take it any more, so I went for a hair cut.  She chopped off the worst of the mess and added layers to make it look more full.  Problem is, my hair had a lot of natural wave before that was controlled by the over all weight of the hair.  With the layers it's no longer weighed down.  So now my hair is wavy, wirey, all different lengths, and sticking out in all directions.  I look like my head exploded.

Anybody have an extra hat?

Regular Member

Date Joined Nov 2007
Total Posts : 68
   Posted 12/19/2007 11:40 AM (GMT -7)   
i have frizzy hair too!! people dont believe it but i do. Try using the straight hair shampoo by frize eaze or avon. It doesnt make it great but it calms the friz and i live in a very humid enviornment so I take what i can.
23 year old married female Diagnosed Sept '03 still fighting for remission longest break was 9 mths
Humira- 40 mg every 2 weeks (just took my first 4-12/6/07)
Asacol 6 400mg tabs aday
Entecort 9mg aday
Live Laugh Love, Live by this and you can fight anything!!
There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.

Regular Member

Date Joined Sep 2006
Total Posts : 181
   Posted 12/19/2007 12:13 PM (GMT -7)   
Bed head manipulator has saved my hair. Just a dab gives shine and removes the frizz. I had lots of hair loss when first on Imuran, it settled down after about 6 months or so. Good luck!
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 12/19/2007 2:19 PM (GMT -7)   
about a third of my hair fell out in January thanks to 6-mp. What's so funny is that it grew back in white and curly. I decided to have it cut and since I'm a grandma now I decided to leave it alone and not color it again. I'm probably about the only one that for the first time in my life I like my hair. It's a pretty white and not gray and I look so much like Mrs Santa Claus that when my grandchildren came over to help bake Christmas cookies I bought an apron just like hers. We had such fun.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (27) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 12/19/2007 2:48 PM (GMT -7)   
My hair has gotten really thin and breaking a lot. I typically get my hair cut 2 times a year and at the same time I get red lights in it and dyed red befre the red lights. I went over the weekend to get the works done and my hairstylist was actually Dx with UC when he was 17. He had an emergency perm. ostomy. The disease was moving so fast that they actually thought he had colon cancer. He is almost 40 now he and his wife chose not to have children he is as skinny as anything but you would never guess he had an ostomy bag but he knows the meds and what they can do to hair.

He chose not to do the red lights since like highlights it uses bleach which would make more of the hair damaged. The dye he uses for just your basic dying does not have peroxide in it therefore it doesnt damage the hair. He said a lot of mine not only was from the meds needed for my flares but also the general anesthesia. I informed him I would be having general again this week for my scope and he had heard from my mom that I will be having a 4th Sx come january. I use to have really really thick hair when I was Dx in 87 I was on such high IV doses then oral doses of pred it majorly thinned outmy hair but it was still very thick. My hair is kind of frizzy but it is half its thickness now and lots of breakage a few inches from the roots. At least my stylist was able to make it a bit more healthy than it was....and those blasted greys are covered up with "paint" as my husband calls it
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 12/19/2007 4:21 PM (GMT -7)   
I have naturally REALLY thick hair. Since I've been on the azathioprine (Imuran) for about 6 weeks now, every time i run my hair through my hair, tons comes out! It's crazy! It doesn't come out in clumps, like an animal's hair or anything, but I'm wondering when this will stop...I have tons more hair left but I'd like to not go bald!
Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg
Neurontin, 900mg/daily
Bentyl for cramping-3x/10mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Caltrate 2x/day
Currently on a Low-residue diet as of 11/26

Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 12/22/2007 12:15 AM (GMT -7)   
bektold.....sorry to hear about your hair.... I definately agree with those that suggested frizz reducing shampoo and bed head or some kind of pomade if you have shorter hair so you can spike it. Did you hair stylist suggest any products to make it behave?

I started imuran on oct 3rd and I am so thankful that I started with a thick head of hair because it's been falling out. It stopped for about 6 weeks and now it's started back up. I can see scalp now. I'm brunette so now I'm seeing my white scalp and it looks uglee. and I've had 3 haircuts since then to try to make it less noticeable--last week my hairdresser was quiet because she thought she had texturized my hair too much. I laughed and said, no it's just started falling out again. Mines not falling out in clumps but thinning throughout my whole head. In a sick and twisted way, I'm glad that you guys are going through the same thing. Sometimes I cry cause I don't see those little wiry new baby hairs and wonder how my hair is going to replenish itself. I'm almost tempted to try nioxin but they say that if your hair is ready to fall out, it's going to fall out regardless.

Take care all....
Newbie - 35 yrs old Diagnosed: 08/03/07
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

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