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Regular Member

Date Joined Jun 2007
Total Posts : 25
   Posted 12/20/2007 3:07 PM (GMT -7)   
SO I HAVE BEEN ON PRED FOR 5 YEARS.i am curently taking 5 mg every other day now i have been on humira for about 3 months.i feel great but my gi wants me off pred completely.i am scared cause evrytime i have gone off i have gotten really sick.but i am hoping with the humira i hope i will be ok.please any feedback would be great!!!
crohns 7 years
two children 7 and 2... :-)

Veteran Member

Date Joined Jun 2004
Total Posts : 1372
   Posted 12/20/2007 3:25 PM (GMT -7)   
Prednisone is not good for you long term. It causes bone loss and should be used only when necessary. I'm on 30 mg a day right now because of a flare and as soon as I have two weeks symptom free I can taper off and stop using it. I just started Imuran and am hoping it works for me. You should have a bone density scan to check for damage from the evil pred.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 12/20/2007 3:56 PM (GMT -7)   
I agree. I know what you mean. I have been on prednisone for most of the last 14 years. Everytime I get below 15 mg I start having symptoms. Finally with the addition of Xifaxan last year I have been able to VERY slowly taper to 5mg a day. But the problems the prednisone has caused my body over the course of the last 14 years is just crazy. Because of it I have been able to live a realitively normal life, but I have had some many side effects that now I take more medications to deal with those than I do to deal with my CD. But, a small dose is better than a large dose so what ever you can get your body down to comfortably is beneficial. I wish you luck.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jun 2007
Total Posts : 25
   Posted 12/20/2007 4:20 PM (GMT -7)   

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 12/20/2007 4:24 PM (GMT -7)   
I have had no recent luck with meds Except for Humira. I had 3 surgeries this year for my CD and most people I was told get 3-5 years with no symptoms....I was in the you are SOL list cuz mine came back. My fistula broke through in September and I was in the process of getting my Humira approved since my joints have always been my big issue thru the 20 yrs. I had my colonoscopy today and he was able to tell that the fistula even tho at the anastomasis (sp?) site it was CD related and not from the surgery which can happen. There was also an ulcer nearby which he did a biopsy on as well as the ileum and the anastomasis. The ulcer is healing he said just the darn fistula got too out of hand before treatment was able to help it without Sx. I had been in pain 1 month post op and they figured it was just post op pain. I was on pentasa to try and help keep the CD at bay then when my joints started my GI called in Entocort and told me to hold off if possible since I noticed no difference in my gut from post op.

When my joints were really bad my nana passed away and I was so bad off that I was unable to walk literally I cryed just trying to make my way to the bathroom to have D which when you have trouble walking and you have D from your surgical recovery it isnt fun. My PCP scripted me the medrol dose pack just so I was able to function arthritis wise for my nana's services. I had no change in gut symptoms while on pred so when I did go on Entocort which is similar in some ways to pred He had me go off of it since it want helping the fistula actually broke through while I was on it.

GL with stopping the pred I had a rough time back in the 80's getting off of the pred and they didnt have these wonderful drugs such as remicade and humira then so I went on Imuran.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

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