well hello and merry christmas to everyone. and any other holiday that you may celebrate, i just saw the "festivus" episode of seinfeld again today. i like the idea!
anyhow, today or rather last night i completed my 8th year on TPN! wow , time flies! also if you have visited my website, 8 years since the blown strictureplasty, the sepsis, the organ failure etc... life goes on
i remember vividly the anger and dispair i had at survining that event. i was mad at my family, the drs and everyone in general. i woke up a week later with a vent tube, several iv pumps with , im told about 20 differant bags all running at the same time. there were iv poles that had 6 pumps each on them on each side of the bed and at the head of the bed. i was in the ICU.
it was such a shock . whenever i had a surgery prior to this i always would put my hand on my belly feeling for an ostomy bag. never had one. and was calmed by that. this time however i felt down and i just said to my self, oh crap!. not only was there a bag, but a very thick bandage on my gut. before it was just a small thin bandage with some tape. this was about 6 inches thick and covered my whole belly! well the big open wound that was my belly. (SEE WEB SITE FOR PICS!)
with the sedation wearing off and my decidedly upset attitude , they had to tie me down to the bed. seems i kept trying to pull the vent out . i had , i think 2 ivs in each arm and one in my neck that had 3-4 lines in it. for all those bags you see.
my wife tells me , and i vaguely remember bits, that i kept telling everyone to make the music stop! i could here the Scorpions playing next door! all day and all night. only problem was i was on the 7th floor and on the outside row of rooms.!
with the sepsis, there was extreme pain. the most painful pain i heve ever experianced. i truly was asking to be knocked out. this went on for hours untill my organs began shutting down. my dr was at home, the nurses kept calling him and telling him that this was not normal "gas pain" etc... he never came. i finally started swelling up when my kdneys went first. they called another surgeon and he rushed me right to the icu. the prgreesion of the sepsis was such that after the kidneys, the lungs startd shutting down. i was rushed to the OR and they quickly discovered that thigs were pretty grim. my entire abdomen was filled with fluid from my intestines.
the surgery report then reads, "the patients heart stopped at this time and vigorous resusatation was started." so as some like to think , by the grace of god or the surgeons skill, my heart was restarted and life went on.
my entire body was poisoned and it sure felt like it! i do not remember much of that few weeks, (thanks versed!), but i do remember that my negative attitude was not a good thing to have at that time.
my entire life changed that december 8 years ago. i would like to think for the better. i have met so many wonderful drs and nurses and other CD patients in that time. my attitude before then was usually a rool with the punches type. i had a brief time of negativity and since then i have strived to be a positve influence on those i encounter.
that epsode and the resulting other surgeries is where i came up with my name , Randynoguts. as you see, when the sepsis occurred it killed most of the rst of my bowel. then each surgery in that next year took more and more. a smaller septic epsode in sept of of '00 took the rest. thats a whole 'nuther story.
so as i close this, my 8th year update, (23 total with CD) i would like to thank those who are responsable for helping to keep things upbeat in my life, my family, my health teams, and all of you !
i know the holidays are a stressful time for us, but just keep a good attitude and make someone smile. it works wonders for me! sincerely, randy