Good chest and muscle physio and mental medicine.

I've been horse riding today, and have decided it is the ultimate in physio.

I guess the mental thing, is more down to the fact, that it's something I've only ever actually dreamed of doing. I was a very protected child, and was banned from anything that might involve getting an infection. Including swimming and travelling by bus.

As long as you are careful, don't muck out, and wear a face mask, it's so good for your lungs.

Sorry to be a bit graphic here: But I have brought up goo right down from the pits of my lungs after my lesson today. Somewhere even physio can't reach. I only did a gentle trot and a lot of walking and steering. I couldn't trot stood up, as my muscles aren't strong enough due too a muscle wasting condition I have aswell.

I can't state enough how good it was too see this gunk coming up, I've just had 2 weeks of IV's, and my chest was feeling quite groovey. But only surface white stuff was coming up with physio.

It generally didn't hurt my legs either, although apparently I'm unusual there. I could just have a high pain threshhold due too normally having painful legs anyway, or because I'm on regular painkillers . It's not guaranteed your legs won't hurt after.

I guess a lot of this is mental, but there is a lot of physical evidance that it's done me some good.

Anyone else find anything that works for them? I generally find singing really good and karate was excellant too. Playing the trumpet is extremely good for keeping your lungs strong. If I could still play (I broke my nose when little, so had too stop) I definatelly would be. It's like a really strong version of doing PEP and works all your lung muscles.

Co-moderator in the: Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.

Had a Port-a-cath fitted on chest wall since Nov 05

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Post Edited (Darkies Gem) : 1/24/2008 2:10:38 PM (GMT-7)

Another Day

Veteran Member

Joined : Mar 2007

Posts : 1055

Posted 1/25/2008 1:33 PM (GMT -7)

Gem,

I am so glad that you are getting to do something that is so much fun that is actually good for you! I'm so happy for you. I used to ride Tennessee Waling horses before health problems and there is just nothing like it. Take a ride for me one day.

Love and Prayers,

Carla

Moderator, Allergies/Asthma

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Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus

Gemsi

Veteran Member

Joined : Feb 2007

Posts : 1050

Posted 1/29/2008 12:22 PM (GMT -7)

Oh definately will huni!

I'm definately starting up riding, I just have to buy the gear first. I'm sooooo looking forward too it.
It was a nurse who took me, she's from the ward I go on, and I've made quite good friends with her (stuff proffessionalism, it's hard not too become friends with them, when they're the only people my age on the ward!) She says, once I have got gear together, that she'll be very happy too keep taking me, as it seems to have done me a world of good.

Oh, and been too the hospital gym today (yes it is daft travelling 1 hour to the hospital just to use a gym once a week, but ah well!). Did 25 minutes on treadmill, 10 minutes on lowest rowing machine possible, and about 20 minutes on the stepper with weights. I've impressed my physios and I think they actually might like working with me, as I'm so eager too get back into shape. They don't see eager people very often (I still say that's down too waking patients at 7am for gym though.)

My chest is keeping up being nice and clear now too, agan that riding has just done me a world of good. My lungs feel empty and not thick, for the first time in over a year.

Lol, think I'm going too get into advertising, as I'm oh so good at it hehe!

Hope you're alright Carla
Gem x

Co-moderator in the: Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Had a Port-a-cath fitted on chest wall since Nov 05

Help support the forums so we can support you: https://www.healingwell.com/donate

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