im wondering why, if all these doctors are such experts, and these CF centers are so great...why arent psychosocial issues addressed more often? in the CF clinic I go to, they'll occasionally hand me some shabby pamphlet "CF and your Future", where for the first 100 of the 110 pages it talks about medical problems, complications, issues that may be present with cf patients as they get older...with one or two pages briefly mentioning the personal worries and issues we have: i.e. finding a mate, raising a family, having kids, having a positive outlook on future with the presence of a major chronic life-shortening illness, and numerous others *note:they are just mentioned, no suggestions about how to cope,except see a therapist)...last 8 or 9 pages being reserved for sources info. what good is that going to do for me? i mean, crap, these are the issues that keep me up at night, not "oh, gee, what shade of green is my mucus today?. If the placebo is such a strong influence on physical well-being, and the connection between positive mental attitude and physical well-being has been proven over and over again, than wouldnt it make sense that Dr.'s help patients in this respect also? instead of shying away from the tough questions and refering me to some therapist who knows nothing of the issues specific to CF? seems like a medical cop-out. everytime i go in to the cf clinic, im tempted to ask why theres such a big difference in the number of CF kids, vs the CF adults. (6 times as many kids)..im hesitant..
Tell me Doc., are they dead? look, it may not be what you people want to hear, but these issues are critical to my mental -and obviously physical-well-being, and probably yours as well. why dont we all start by sharing our common worries in this regard, and if any one has any ideas on how to cope, ..lets start a forum.
Post Edited By Moderator (Admin) : 4/12/2005 1:19:59 PM (GMT-6)