CF is a very manageable condition, with cases of survivors living into their late 70's. The problem is that the conventional understanding and medical approach to CF is fear-based, relying too heavily on drugs, and not at all on Nutrition, which is something you can control at home, with excellent results. 1) Antibiotic therapy is utterly insane. It wasn't till my fiance discontinued her daily regime of antibiotics that her health, at age 32, improved dramatically. The problem is that antibiotics destroy probiotics. Anti-biotic, after all, means "Against Life," and given that there are at any given moment over 10 trillion bacteria in the human body, all, mind you, there for good reason (secreting antivirals, creating vitamins, digesting nutrients like milk sugar, and probably maintaining an uncountable number of essential biological functions), antibiotics destroy both the good and the "bad." Pro-biotics, on the other hand, accomplish the same end: crowding out and destroying bad bacteria, and more: yeasts and some viruses, but have no adverse side effects. The cold-like symptoms you describe sound like a classic case of antibiotic shock. I would suggest a wide spectrum probiotic like Primal Defense (Garden of Life), or MegaFlora (Mega Foods), both which have 14 good strains of bacteria, including the all important Bifobacterium strains, which reside and maintain the health of the colon. 2) Green Foods Heal! A recent clinical study established that wheatgrass juice was able to Heal lung lesions. The number of conditions wheatgrass is effective against is too long to list. But the key principle here is that Green Foods Heal. In esoteric healing arts Green is the color of the Heart Chakra turned inward. Whether a poetic metaphor or not, science has demonstrated the incredible healing power of chlorophyl, and its biological similarity to hemoglobin. It is quite literally plant blood, and is able to provide the body's cells with all the ingredients necessary (e.g. RNA/DNA) to rebuild healthy cells. 3) Adding enzymes to the diet of someone with CF is a secondary consideration to the quality and "life activity" of the foods being eaten. A puree of steamed dandelions, collards, kale, onions, garlic, etc, perhaps mixed with a little quinoa, will require very little additional enzymes to fully assimilate. And the nutritional benefits are immeasurable! My fiance practically healed her chronic acne, fatigue, and bowel issues overnight, by changing her diet to exclude dairy, gluten-containing products (no wheat!), soy, and high glycemic foods.
The cure to CF will never be found in genetic testing methods, antibiotic therapy, lung transplants, and all the traditional lucrative medical (medeival) crap out there! Nature heals, and it is every body's birthright to be healthy, to find balance in what nature offers, no matter what "condition" we choose to incarnate with as our particular challenge. I encourage you to look for natural answers to your beautiful child's struggles. The answers are there! Best of Luck.