Best treatment centers?

I was diagnosed wcf in Chapel Hill when they were first starting the genetic testing.  I was 38 then and 51 now.  I can't speak directly about the peds cf center, but I lived in the area for about 20 years and it is quite beautiful and has a very high quality of living.  I am now in Houston myself, but I am seen at the adult center associated with Baylor at The Methodist.  There is another peds cf clinic at The University of Texas Outpatient Peds dept at Hermann.  They may not be a certified center, but it is smaller than TCH.  I work for a company that provides products to the cf hospitals, and although it is quite large, the center at TCH is very good.  Maybe you need to have a good talk with your doctor there.  If you don't get a good feeling about the conversation, it may be time for a new doc.  Anyway, I have also worked professionally with the people at UNC and they are terrific.  However, it too is a large center so simply be aware of that.  Maybe someone else can speak more directly about the care there, but as for the area, it is super.  Just a couple of hours to the beach and a couple to the mountains too.  Try the group at msn called "cysticfibrosis2chat" for a greater response.  Go to MSN, scoll down to groups, then choose support, heart and lungs, then cysticfibrosis2chat.  It is a great group and larger than here.  Good luck.

BoeJaker 51 wcf

Hi again,

The air quality in NC or the Chapel Hill area is much better than Houston!  The Raleigh-Durham area is a growing, dynamic area but the people put a lot of emphasis on quality of life.  Although UNC has a large clinic, I believe the quality of care is excellent.  However, I also believe that in any institution it is up to the patient/parents to have an excellent channel of communictions and mutual understanding of "expectations" with their physician to ensure the quality of care.  Good luck.

BoeJaker 51 wcf