Hi there Cori, I want to second kitt's welcome too healingwell!
I'm realy sorry it has taken me so long to reply too you. I am in hospital at the moment for a course of IV antibiotics. While there has been an internet connection present for a while now in the hospital, I am the first patient too attempt too use it, so it has taken a week too get hooked up with my laptop, but I've managed it, and got another patient up and running too:)
I am a married 22 year old and have Cystic Fibrosis myself. I don't have any real secrets though other than just try your best.
I get myself overly excited at the good things, so I can remember them when things get tough. When things get tough I remind myself, I have been in before, as have a lot of people before me, and it's not the end of the world.
Just recently, I think that's what keeps me ploughing forward, knowing that on a rollercoaster you always have too slowely work your way up to a peak, before you can get too the fun easy drop down. CF sometimes makes good things even better and more special.
My health is generally good, I have a high lung function, with an fev1 of 90% (my secret to that is playing the trumpet as a kid)
I go to college, I'm doing a mentoring course aswell as college. CF never holds me back, it's usually the muscle problem I have that does it. I adapted to hopsitals and treatment very young, and is just automatic too me now.
I am currently trying for a baby of my own. Been trying for 5 years now, but only just stepped on the band wagon with the hospital really as too why I'm not preganant yet. I've met a lot of opposition, because even though our child wouldn't have CF, they would be a carrier. But then 1 in 25 people are carriers of the gene anyway.
I can't think of what else too put. I'll respond again later. Hope you and your family are well!
Moderator of the Cystic Fibrosis Forums
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Currently it is Tuesday, December 11, 2018 1:48 AM (GMT -7)
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