I do not have CF but I am the mom of a 5 year old with CF. I am happy to answer questions about what we have gone through so far. email@example.com is my e-mail--put "?about CF/healingwell" in the subject line so I know who I am talking to and my hubby doesn't delete it. another good site with helpful people would be http://groups.msn.com/cysticfibrosis2chat
you can also get some info from my site at http://groups.msn.com/teamRachelJane
I hope this helps!!!!
mom of Rachel, 5 & 1/2 with CF, and a boy on the way, no CF