Cystic Fibrosis and the Insurance Companies

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New Member

Date Joined May 2004
Total Posts : 2
   Posted 5/17/2004 6:54 PM (GMT -6)   
Hello everyone,
I am a mother of two children who is now battling the insurance companies to continue to pay for their Tobramycin and Pulmozyme treatments.
Has anyone had to battle their insurance company to pay for meds?  I sure could use some information and or help with this matter.  Looking forward to your kind responses.
Kari857 momof2 with CF.

Regular Member

Date Joined Feb 2003
Total Posts : 53
   Posted 5/19/2004 12:15 PM (GMT -6)   
Yes I have done battle with the insurance company before. I don't think it ever ends. My best advice is to tell them that these are preventative measures and remind them how much it costs if your kids gets sick. It will end up costing them more to pay for repeated hospital stays than it will for them to cover the meds.
mom of Rachel, 5 & 1/2  with CF, and a boy on the way, no CF

New Member

Date Joined Dec 2004
Total Posts : 6
   Posted 1/17/2005 12:44 AM (GMT -6)   
The battle with insurance companies is a never ending one but I finally recruited the help of my family Physician and CF specialist. Sometimes they can send letters and support your need for certain things. I have argued for months sometimes and when I finally got the docs involved it took one phone call or letter and things went through. Don't be afraid to ask them for help.

New Member

Date Joined Mar 2005
Total Posts : 5
   Posted 3/23/2005 8:54 PM (GMT -6)   
There is a form you can get from your insurance company and have your doctor fill it out and fax it back to the insurance company, I myself just went through it with my son.
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