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Double lung transplants

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Posted 7/26/2008 9:12 AM (GMT -8)
Hi all,

I don't have CF, but I have always wondered if when a person gets a lung transplant that has CF, do they still have to worry about mucous building up in the new lungs or is that no longer a problem?  I am just curious is all.

Hugs,

K

Posted 7/27/2008 12:41 AM (GMT -8)
Hi there K,

To my understanding, it is not a problem for a while. The new lungs won't have the CF faulty genes in them. However over time (we're talking years here probably) as the lungs take any damage and need to repair, I think those genes in the new lungs, will get replaced by CF genes. If this makes sense?

People post transplant can still get infections, same as anyone else, especially with the strong anti-rejection drugs that can cause a weakened immune system. But, they will no longer get CF infections.

Wowie, that's a hard one too explain tongue

Gem

Posted 7/27/2008 4:38 AM (GMT -8)
Hi Gem,

Thank you for explaining this to me.  I was wondering and now I see why they do not try to do a lung transplant on all of the folks with CF until the lungs are severely damaged beyond repair.  I don't have CF, but I do have Lupus and Sjogrens and several of the other Auto-immune illnesses and the worst of all is that I just got diagnosed with Celiac Spru.  The diet is the worst of all to get use to as I screw up and eat the wrong thing and then pay for it for the rest of the day.  The lupus and Sjogrens are affecting my lungs in a big way due to the inflamation of the lining of the lungs and boy I have to watch out for infections big time as I am also on an immuno suppressor drug, Imuran and other meds for the Lupus and anemia etc.  I will be 50 in december and have had Lupus since the age of 5 years old, so I do know what it is like to be sick all your life and it sucks.  I hope and pray for a cure for CF and Lupus and any other illness that is horrible out there.  God Bless Gem and thanks for answering this post for me to help me get a better understanding.

Hugs,

K

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