Double lung transplants

Hi there K,

To my understanding, it is not a problem for a while. The new lungs won't have the CF faulty genes in them. However over time (we're talking years here probably) as the lungs take any damage and need to repair, I think those genes in the new lungs, will get replaced by CF genes. If this makes sense?

People post transplant can still get infections, same as anyone else, especially with the strong anti-rejection drugs that can cause a weakened immune system. But, they will no longer get CF infections.

Wowie, that's a hard one too explain

Gem

Moderator of the Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

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pinksage

New Member

Joined : Jul 2008

Posts : 10

Posted 7/27/2008 5:38 AM (GMT -7)

Hi Gem,

Thank you for explaining this to me. I was wondering and now I see why they do not try to do a lung transplant on all of the folks with CF until the lungs are severely damaged beyond repair. I don't have CF, but I do have Lupus and Sjogrens and several of the other Auto-immune illnesses and the worst of all is that I just got diagnosed with Celiac Spru. The diet is the worst of all to get use to as I screw up and eat the wrong thing and then pay for it for the rest of the day. The lupus and Sjogrens are affecting my lungs in a big way due to the inflamation of the lining of the lungs and boy I have to watch out for infections big time as I am also on an immuno suppressor drug, Imuran and other meds for the Lupus and anemia etc. I will be 50 in december and have had Lupus since the age of 5 years old, so I do know what it is like to be sick all your life and it sucks. I hope and pray for a cure for CF and Lupus and any other illness that is horrible out there. God Bless Gem and thanks for answering this post for me to help me get a better understanding.

Hugs,

Live each and everyday as though it were your last and do the best you can to help yourself and others.

SLE (Lupus), Sjogrens Syndrome, Celiacs Spru, and Megaloblastic Anemia, Akylosing Spongilitis, Degenerative Disc Disease, and Osteo-Arthritis.

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