Hi Jessie. My name is Megan and I'm a 21 year old with CF. My current routine is a little different than normal but I shall include both normal and the currently crazy one
I had sinus surgery on August 1, and due to the high levels of MRSA and pseudomonas (which I can never spell) I was put on a picc line and am currently receiving 5 hours of IV antibiotics a day, so that makes my usual schedule a little messed up. It's all preventative to try and get rid of it, thankfully but it still stinks to be home-bound because of it.
My normal routine depends on the month. I am on inhaled TOBI on 28 days, off 28 days so if I'm on TOBI it adds some time to my routine.
I usually get up around the same time everyday due to school or work. I then check my blood sugar (as I have been diagnosed with cystic fibrosis related diabetes) and then I eat breakfast with my enzymes and a supplement of accedopholus ( again I can't spell, I'm sorry lol) which helps to put good bacteria back in my body due to the constant strain from antibiotics.
From there I do my morning nebs. I do albuterol with my thAIRapy vest or accopella. I then do TOBI if it is one of my on months
From there I make sure to check my blood sugar two hours after breakfast and I always keep something like a granola bar with me for any lows
After that comes a large lunch to try and keep my calorie intake up. I usually try to eat 4-5 good meals a day to ensure a high calorie intake.
From there I am usually in class or at work and the next time I get is dinner time where again, checking of sugar and then trying to add a huge amount of calories.
At night, I do the thAIRapy vest again with albuterol, pulmozyme, and then TOBI if I'm on it for that month. With my nighttime snack (usually a pretty large snack, more like a meal) I take my azithromyacin every MWF to help reduce levels of either MRSA or psuedomonas in my body (i'm not sure which it is for). I also try my best to remember to incorporate vitamins but sometimes I forget. I have bought a pill case, but it's so hard for me to remember.
After dinner, I try to bike ride, run, or take a walk at least to ensure SOME excercise. With the PICC line, I haven't been allowed out of the house, but I normally try to involve some excercise. If you have ANY questions please don't hesitate to respond and ask.
Good luck and my prayers and thoughts are with you!