Eugh, STILL not in hospital yet. They still have no beds!!! Started home IV's this afternoon. I'm really not impressed I don't do home IV's anymore, as I don't feel I can cope with tem, but for now I have no other option. I really want to be well and happy for my hols at end of month. My lung function has dropped now again, my first test was 75%, second 83% must have cleared something on first blow lol Was wheezing and spluttering throughout. It's quite a drop from 93% for me, it's not very often I ever lose any lung function. Explains why it's feeling so hard to breathe right now anyway.
Physio's had a go at me, for not doing my balance excercises this week. They're really missing the point about
being in pain and breathless. Ah well, I guess I can ignore them for now, and face them when I'm feeling a little better.
So sorry to hear about
your Grandma. Give her a cake from me - cakes much better than grapes when you're not your best. Hope she's up and pottering about
soon, my prayers are sent chuck.
All the best!
Gem x
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you: https://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus
Currently it is Saturday, December 15, 2018 9:01 PM (GMT -7)
There are a total of 3,027,707 posts in 331,122 threads.
View Active Topics