Thankyou for sharing your experiances.
I don't expect post transplant to be pain free. I imagine it to be like three times as painful as having my port fitted, and fifty times harder to start to accept new things.
I know however that does get better, and that's the goal I will strive towards-that eventually I will feel better and things will be a thousand times better than what they were before transplant.
That to me is worth all the pain I think. I'll probably be feeling completely different just post transplant though, and just be sat there cursing phlebotomists cause they've stuck yet another needle in me. I'm not an easy one to please:P
Just a thought. You know when they do the big transplant op. Do they remove your port at the same time-or let you keep it for a bit longer until you're well again. It's a question that's not cropped into my mind till now. I'll be sad to lose my little friend.
Oh, and there's no worries about
me not listening to something the docs say. I listen well-to make sure they're not about
to screw up. It's almost become a talent lol.
Hope you can have staples removed soon, and that you heal well and quicker than quick!
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine, Slow-Sodium, Azithromycin, Cirpofloxacin, Septrin, Omeprazole, Tobi Ineb and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.