help

Hi there bladerunner, welcome to the site,

Firstly, of course we don't mind you posting a topic, that is what Healingwell is here for:)
Secondly, do not blame yourself for your child having CF. You didn't one day decide 'oh yes, I'll have a kd today, I'll make sure it's the CF egg that gets fertilized. You could not have known, there was no way. CF tends not to show up in histories of families. The only way you would have known, is to have been genetics tested yourself, or for either you or the father to have CF. Carriers show no symptoms, as the gene doesn't get activated as a single gene. You could have not stopped this from happening, unless you didn't have kids at all, and it's human nature to have children.

CFRD-there's still a lot unkown about it. What I am told by my dietician, is that is if it's going to trigger, it will do. There's nothing that can be done too stop it or hold it off. I have friends who live normal lives (well as normal as CF gets) that are in adult hood, and have been dealing with CFRD since being little. They manage it really well, and only have real problems when they have to have IV treatment, as the strong meds can mess up the system. I don't have CFRD myself, only slightly low sugar levels when I've been busy, so can't tell you how it's effected me, or going to effect me if I do get it in the future.

The treatment may seem a little rushed, but the sooner they get your daughter on a stable dose of treament, the better it will be, as then they won't have to keep having your daughter back often to adust treatment.
I do know whats it's like to get rushed into doing things, and do sympathise with you. I recently have had similar problems with my own treatment.

I hope you're little one is well, and I hope you can adapt quickly to the change with diabetic treatment.

 

Best of wishes

Gemma

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