I need help, my 5 year old son was just diagnosed with CF, he has had 2 sweat tests done, the result were over 60 the 2 times, I have been trying to get info about CF but I have not been lucky, my son does not really fit the description of a person with CF, he is actually a big boy.
He was first diagnosed with asthma, then this went out of control and he has been admited to the hospital several times, but he does not seem to have any growth or digestive problems. We are having our first care team meeting tomorrow, I do not know what to expect about all this, and on top of my son's CF, my other son was tested but we had no results, he does not sweat!!, he was also diagnosed with severe asthma and apnea, and resently started having problems with his digestive system.
Their doctor said that there is a high chance of him having CF as well, but we need to wait for his generic test results, since we were not lucky when his sweat tests were done. I'm so confused, I would have to have my two girls tested and my unborn child as well, I'm 22 weeks pregnant. I'm desperate, please help me.