I've just found this bit of info out, I'm yet too see how useful it will be.
If you have a Profile ADD Ineb, then there is now a new type of chamber and mouthpiece available especially for Tobi. It means however that you have to do 2-3 runs with it, to neb all 5ml of Tobi. But, that's only 6-9 minutes work if you breathe the right way, better than the 20-30 mins with a Pari Turboboy.
When first brought out, Ineb could only nebulise Promixin - a brand name of Colomycin. Now it can neb DNase (AKA, dornase alfa/ Pulmozyme) Saline and now Tobi too. Putting it on a more level line with a Pari eflow machine. Which is good, as across the UK Ineb is generally free, but eflow are hard to get hard of and more expensive, and not as portable.
I have a feeling it's going to get rid of the trouble I had using a Pari Turboboy neb, where I can't breathe the med in properly and end up completely losing my voice until I stop using it. I'm just waiting for confirmation from my team that this is going to be possible for me to do, and that I'm still ok taking Tobi, because I haven't had it on prescription since last December.
I'll let you know how it goes-this is a major breakthrough in my eyes. I'm allergic too Colomycin, and not being able too nebulise anything right now, means that I've been getting ill again not long after a course of IV's, but having to put up with it for months, as my team will only allow IV's every 4 months at the minute. I really hope this works!
I hope this helps someone else, with the same problems with nebbing Tobi as me, that's why this post is here.
Hugs all round
Moderator of the Cystic Fibrosis Forums
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
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Post Edited (Darkies Gem) : 11/18/2008 2:02:27 PM (GMT-7)
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