Hannah Montana and High School Musical, my sister is mad on them at the minute. She insists on playing it while I'm there. She's 13 though, so hopefuly she'll grow out of it soon haha!
Thankyou for your prayers. Hey, it must have worked an done some good, because the hospital were actually helpful today!!!!
I'm now on Azithromycin long term. The new chamber for my neb has been ordered and should be on it's way. I'm getting a barium scan done, to finally find out what's wrong with my belly. I've been feeling sick on and off for years. They're finally going to test to find the problem. Previously, they tested my brother every year, and decided I must have the same problem as him, so never tested me, just put me on the same medication as my little brother which didn't work for me.
It's nice to have an appointment that hasn't made me so angry at them for once.
This made me laugh today:- The Ineb can be plugged into the hospital computers. The results are then downloaded for how often you've been taking it, how long treatment has taken, whether it was a full treatment session etc. My physio decided to plug mine in, forgetting I've not used my Ineb for a year and a half. So she was annoyed for a bit, and asked me what the point of starting Tobi was, if I was being complient with the med I used to take. I pointed out that I hadn't used nebs in so long, because of allergies to old med colomycin. She was confused because it said I had done a bit of a treatment this morning, she thought I'd done one session this morning to proe I'd been using it or something. I'd ran saline through it, before setting off for hosp, to make sure it still worked ok, to save time in clinic, which showed as half a treatment session on their computer.
Haha, at least I know it's definately recording treatment right lol.
I'm expecting some pans for christmas, and a new Nintendo DS. The pans from my mum, because the ones I've got now, I can't lift and aren't very safe for me to use as I have a habit of dropping them.
A new DS, from Paul, as my old one is an original one, and it's that scratched that I can't play games properly anymore.
Have no clue what to get Paul for Christmas. There's nothing he specially wants. It's probably going to be a dressing gown, slippers and a game like last year lol.
Are you expecting anything good for xmas?
We got our Wii through a hire/purchase company called Brighthouse. Could this be an option for you? It's £5 a week, and you end up paying more than RRP in the end. But, it lets you get stuff without having too fork out a lot at once. The good thing aswell, is while you're paying it off, they fix any problems with it for free. Which is good, as I've heard of Wii's breaking after a year or so.
Moderator of the Cystic Fibrosis Forums
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
Posted 12/1/2008 10:12 AM (GMT -7)
your not going to believe this! last friday i was talking to a friend of mine about the hospital in mullingar the one i was telling you about, when they messed up with taking out gypsys long line and she was telling me about this girl that went there having her baby, whatever happened to cut a long story short the baby died a few weeks later. well i got so thick that i went to the shop got some credit for my phone and rang the News Of The World. had a chat with them over what happened to gypsy and that solisters did'nt want to get involved cause it's realy hard to sue the helth board. news of the world told me to write a letter to them and ask why gypsy was addmitted for rutine antibiotics and ended up in crumlin under annistetic then said they have to reply to me by law and then get straight back to them.So i rang the solistors just so they could write the letter for me and as soon as they heard news of the world they where like"oh you definately have a case". Its not about the money even though i won't deny it would be nice for her to have something to fall back on when she's older, but i realy want to name and shame them and hopefully they'll be more carefull with the next little boy or girl that walks through them doors. chat ya later gem xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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