I was Dx @ 25 after my second child was born. (Child, HA he is now 27). Had a REALLY bad pregnancy, ended up with pneumonia that just wouldn't go away, and finally the doc gave me a sweat test as a last resort to figure out what was wrong with me. I was always told my whole life, "you have asthma, severe allergies" had 5 sinus surgeries in my teen years, growing polyps like weeds. I always had a chronic cough and caught things easily.
I have always been PS so I never took enzymes until just this last year after a bout with pancreatitus. I became CFRD @28, insulin dependent. My lung involvement really didn't kick into high gear until my early forties. From 25-40, I was pretty healthy, worked, raised my kids, stayed active and busy. CF was more of an annoyance when I'd get a cold, I'd always end up on ABX, but orals did the trick until I caught MAC in 1999. That sucker just about
did me in. Had most of my left lung removed in 2000, and been on a steady decline since. My FEV1 sits around 50, give or take. But I did eradicate the MAC after 2 years of intense ABX, and haven't cultured positive since 2000. *knock on wood*
There are many older CFers, in their 40s, 50s and I even know a few in their 60s. I think I know about
15 that are older than 50. I actually know a gal on another forum who was DX @ 52, another @48 and her sister @ 50. So know that you are not alone. There are plenty Dx in their 20s, seems to be the age when the lungs kick in.
I'm glad you have your boys to help out keep you going. Focus on how healthy you will be after tx, chasing your boys around. What a great goal!
I know I kept going for my kids, determined to raise them and see them to adults. Now they are 27 and 29. My daughter has been married 6 years and has 2 beautiful babies, my little grandbaby loves, 4 yo and 6 months.
I do have a blog with my whole sordid life about
me and my CF. However, I really don't want to make it public here. I'll send it to you in your profile email.
Shall close for now,
53, Dx 25, married, mother to 3, Grandma to 2 :)