Posted 8/8/2004 7:57 AM (GMT -7)
Congrats for getting listed at UAB. I am not sure you live in the UAB area, but ask the center if they have a support group that you might be able to attend. Most lung tx centers have this benefit as they realize the importance of pre and post lung tx patients, meeting, sharing, and learning the process from those who have been through it.
My lung tx was 7 years ago and my sister had hers 3 years ago. Both doing well, though I am in chronic rejection now, but still doing great.
I am not sure what type of concerns, or ideas, or future plans you might be thinking, but please feel free to email me anytime.
Susan Burroughs who has CF had her tx at UAB about 5 years or so ago. I think she is very beneficial in connecting with too.
I do have a web site that is for pre and post lung tx folks and a great place to get that inspiration and motivation you sometimes need. And the experiences of others is very emotional, while gives you a more realistic view of what is to come. I have put the site info below.
Joanne M. Schum