hello...i'm new!

sasha12

New Member

Joined : Jan 2009

Posts : 6

Posted 1/25/2009 8:09 PM (GMT -7)

hi everyone. i came across this site after searching for cystic fibrosis forums. i'm 15 and i was just diagnosed about a month and a half ago. here's my story.....Back in August i started feeling kinda sick, and it just gradually got worse. i had been to the doctor five times and was being treated for athsma. she kept giving me new inhalers and nothing worked. i eventually just could not breathe at all one night and we went to the emergency room. they did some tests and sent me to a bigger hospital that night where more tests were done and it was eventually confirmed that i had cystic fibrosis. i was in the hospital for three weeks on antibiotics and learned all about my diagnosis. it was kind of shocking, but now i'm accepting it and doing all my treatments. the other part is, this being a genetic disease, the doctors tested my brother. he has cystic fibrosis too, he's 12. he didn't really have the symptoms, and wasn't sick, so he didn't need to be hospitalized. now that we're back home and in school things are pretty much back to normal! that's good...and now i'm on here and just wondering how you guys are doing? when were you diagnosed? hope everyone is well:))

Gemsi

Veteran Member

Joined : Feb 2007

Posts : 1050

Posted 1/26/2009 2:40 AM (GMT -7)

Hi there Sasha and a big huge welcome!

I have CF and am 22, and have a 20 year old brother with CF.

Some people, say there's mild CF, where people don't really experiance any symptoms. Some are completely pancreatic sufficient, so therefore don't need the extra top-up the rest of us with CF need. It varies so much from patient-to-patient. Me and my brother are so completely oppsoite, it's strange.

It must be weird being diagnosed so late. For me I was diagnosed at 2, just before my brother was born, so we've pretty much always known we have CF, and have got used to that.

I'm glad things are back to normal for you, and that you're doing well.

Keep us posted how you're doing, it's great to hear when people are doing well!

Gem

Moderator of the Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine, Slow-Sodium, Azithromycin, Cirpofloxacin, Septrin, Omeprazole, Tobi Ineb and Fresubin.

Had a Port-a-cath fitted on chest wall since Nov 05

Help support the forums so we can support you: https://www.healingwell.com/donate

Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

tyke

New Member

Joined : Oct 2008

Posts : 3

Posted 1/28/2009 3:53 PM (GMT -7)

Hi Sasha,

I am a 24 yr. old female with CF and I also have a brother with CF, he is 16. I was diagnosed at 6 months old so CF has been my life. My brother on the other hand was not diagnosed until he was 11. Our cases are completely different. I have always been sick and I am in and out of the hospital all the time, he has NEVER been sick from CF and never been in the hospital, I hope it stays that way.Despite being in and out of the hospital a few times during each year I live a normal life, I even just got married last May! If you have any questions at all I would love to answer them. My private email addy is kasie_nicole84@yahoo.com, feel free to message me.

Take care

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