Everywhere online including on the CF Foundation website (the masters of CF) says:
<40 is definately no CF
40-60 is a borderline/grey area
>60 is positive.
I really do think you need a second opinion.
Clubbed fingers is a sign of infection-a lot of infections in a CF patient don't show up that well on xray or as symptoms all the time, but they do cause clubbing. Headaches could be low O2, high CO2 or something completely unrelated.
As for looking and sounding well, I have a friend with CF. She was on the lung transplant list-she was a year over how long doctors had expected her to live. Her family had just been given the 'she's not making it through this' like 3 months before. She managed to get up on TV, smile, and look rather normal, considering she was hooked upto an oxygen tank. She then carried on for another few months-had a double lung transplat, and a month later was caught running down a beach, oxygen free, and looking more normal than ever.
Looking young and looking normal, seem to be traits to CF patients. Though that's obviously not an absolute thing. It's usually why I have such a confusion over cross-infection, because how am I meant to stay away from other CF patients, when they just look the same as any 'normal' person.
I'm not trying to scare you into thinking your son has CF. However I think it is best for you to push until there are some absolutely definate results. People with CF on average, do a lot better the younger they're diagnosed. If your son doesn't have CF, then you can move on to looking for a different diagnosis.
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Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine, Slow-Sodium, Azithromycin, Cirpofloxacin, Septrin, Omeprazole, Tobi Ineb and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.