Hey there Scott,
Welcome to the forums.
I'm Gemma, 22 with CF and a few other undiagnosable problems.
I'm not going to lecture you-I hate being lectured about
this, but it is something you should always be aware of.
Cross-infection across CF patients is a risky business. You might have something they don't have, and if you pass it on to them, they might not react as well to it as you have, and vice versa. CF patients carry very CF specific infections, that are mutated to grow in CF lungs. You may both have psuedomonas, but there are thousands of different strains and mutations of the bug, and different strains can react differently, and you can carry more than one at once.
I understand the urge though to be able to speak to someone who understands and knows what you are going through. I understand that very well. I just wanted to make sure you are aware there are risks involved in meeting others with CF. I get told these so often-because I have a brother with CF-god knows how they expect me to not talk to him, but I think it'll be turning into just phone convos, if either of us get a big nasty bug like cepacia. How sad it is to have to think like this.
I'm on Creon 10,000. Creon 25k gives me belly ache really bad, daren't even try 40k! I also have liver disease and am on Tobi nebs.
You're health sounds like it's doing good, I'm happy the meds are working so good for you. Hope it does stay that way.
My little sister plays golf. She's 13, without CF. Lol, I could never get into it, plus it means having upper arm strength and I have none!
Stay well, and keep us posted.
Moderator of the Cystic Fibrosis Forums
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Lofepramine, Slow-Sodium, Azithromycin, Ciprofloxacin, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you: https://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
Posted 2/19/2009 9:32 AM (GMT -7)
yer i know about the Cross-infection across CF patients its is a bummer like i get told about it all the time too just another thing in the list u cant do lol
i can be with my bros that dont not have CF but there great with me and i thank thm for that and thanks for the reply :)
Posted 2/19/2009 3:53 PM (GMT -7)
Hey Scott, my name's Deirdre. I'm not looking for any kind of romantic relationship, but I'd love to chat with another CFer! Maybe we can email each other. You should be able to find my email on my ... page? um... i think it's under my name when I post. Anyway, if you like, feel free to email me; I don't have enough correspondence with CFers.
kay, see ya!
we are all lying in the gutter, but some of us are looking at the stars.
Currently it is Tuesday, December 11, 2018 8:28 AM (GMT -7)
There are a total of 3,026,560 posts in 331,030 threads.View Active Topics
This forum has 162590 registered members. Please welcome our newest member, rff2017
160 Guest(s), 10 Registered Member(s) are currently online. Details
, Bob in Elkridge
, getting by