Hi there,
I'm sorry I can't really answer any of you your questions. I've only ever heard about
1 type of sweat test, where the accuracy is about
98%. I never knew there were 2 different types!
Severe asthma can sometimes show symptoms worse than CF, so this is still a possibility for your son.
Most people with CF do not have any known relatives with the condition, as it's still really being understood, about
how it can effect people.
I'm sorry I can't give any better answers, and the only way of knowing for sure whether your son has CF is by waiting for all testing to come back. CF can be mistaken for so many different things, and even if you have a few symptoms that could indicate CF, it isn't always the case that that is definately what it is. Your other children will need to be tested too, if it is found your son has CF.
All the best of luck with everything
Gem
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you: https://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
ley2106
New Member
Joined : May 2009
Posts : 1
Posted 5/6/2009 7:50 PM (GMT -7)
Hi..First of all i would recommend breathing! Its a lot of info in a little amount of time. They maybe wanting to take a second test to have a baseline to refer back to. Take every day one day at a time. For me i take it an hour at a time. I have twin sisters who are cf and they are 10 years old. It can be lived with and your life will not come to a stop. You are your child's best and only advocate. Reserach, educated yourself. Find others like you or even those who have gone before. The path is only scary because it is unknown. Children are fighters and will always need a stong support group. Relax and i would say education is the best way to calm yourself. It worked for me. Best wishes!
Momtomy7!
New Member
Joined : May 2009
Posts : 2
Posted 5/7/2009 9:23 AM (GMT -7)
Thanks so much!! Tomorrow we will find out for sure. I have read some stuff about it but need to dig a little more. I will post again and let you know what I find out!
Gemsi
Veteran Member
Joined : Feb 2007
Posts : 1050
Posted 5/13/2009 10:53 PM (GMT -7)
Any news yet?
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you: https://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
Currently it is Sunday, January 20, 2019 4:47 PM (GMT -7)
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