Hey Abbs, welcome to the forums!
Thanks for telling us about
One of my friends has a seriously bad curvature problem. So far it's not affecting his breathing. His parents were really worried about
the spine straightening op, with it taking about
10 hours to do, and whether it's safe to be under that long for a CF patient.
They've decided now that they're not going to do the op, unless it starts to effect his breathing.
It sounds like a really painful op though. I'm glad you went throuh with it, and that it has helped you so much!:D
Moderator of the Cystic Fibrosis Forums
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio. Had a Port-a-cath fitted on chest wall since Nov 04
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.
Posted 9/29/2009 9:23 PM (GMT -7)
It does take ten hours, which is a LONG time to be under, especially for us CFers. But for me, anyway, my recovery was fast. Incredibly fast, according to the doctors. Even for a normal person without CF.
Anyway, I wish your friend luck, but if he does have to get the surgery I would recommend going in to the hospital two weeks prior for a cleanup. I'm positive this helped my outcome.
Posted 11/6/2009 5:38 PM (GMT -7)
Meds I'm on are making me deaf. So it goes. But definitely -- life is tough with Cf. Anything paired with it (or combined, if multiple disabilities) makes things exponentially worse. I mean, I can't fully understand what you're going through. All I can say is I'm humbled just hearing about you if you're still choosing to make the most of life. I suggest you try.
Currently it is Friday, December 14, 2018 3:44 AM (GMT -7)
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