Hello Abbs,
I don't get problems with my polyps yet (though noone ever looks up my nose to see, and I'm forever have nose bleeds).
You're right, nasal polyps in CF is very common! Sorry to hear you have had to go through 2 ops to have them removed. That must be a real pain!
Have fun posting on the forums
Gem
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio. Had a Port-a-cath fitted on chest wall since Nov 04
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.
Abbs
New Member
Joined : Sep 2009
Posts : 11
Posted 9/29/2009 9:21 PM (GMT -7)
Thanks for the response!
It really hasn't been that bad. Two surgeries, yes. But one was in June 1998 and the other was March 2009... so all in all, an eleven year gap isn't too bad.
lissy
New Member
Joined : Dec 2009
Posts : 3
Posted 12/27/2009 11:59 PM (GMT -7)
i am 13 and i have had 4 surgeriers cause polyps... i use the sinus nasal washes... they clear out your nose and prevents surgeries.... since i have been doing this daily this is the first time in 1 1/2 i havent had surgery....
Abbs
New Member
Joined : Sep 2009
Posts : 11
Posted 1/22/2010 2:16 PM (GMT -7)
Yeah, I use nasal rinses too. And Nasonex. It works!
Posted 3/9/2010 12:31 PM (GMT -7)
hi im hayden im 16 and yes i have this problem all of the time i have had mine removed once
and now i have them again but this time i cant SMELL anything! so im going to have another
surgery soon but ya your not the only one!
midge-lea
New Member
Joined : Aug 2010
Posts : 13
Posted 8/4/2010 6:14 PM (GMT -7)
hi, i had nasal polyps until i was 13 i had them removed and so far they havent returned yet and im 20 now, although i had a bad experience when i had mine out, i was told not to sneeze but hey when you need to your gonna, well i did bout 6 hours after surgary and i lost a heck of alot of blood, i wouldn't go through that again. one thing i will say though is when i had mine i could swim without getting water up my nose, now theres no chance and it hurts more i cant stand getting water up there. x x
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