Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Life Expectancy???

Support Forums
>
Cystic Fibrosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
MouseGirl
Regular Member
Joined : Oct 2009
Posts : 38
Posted 10/27/2009 10:16 AM (GMT -7)
I've done research on cystic fibrosis and mostly I've found that it is 35 to 37.2 years. Is this still true or has gone up again? My boyfriend Brad told me recently that his doctors told him that he wouldn't live past his mid-30s... He said that the life expectancy has gone up to about 50 and I just want to clarify it. I'm really worried about him.... sad
profile picture
Gemsi
Veteran Member
Joined : Feb 2007
Posts : 1050
Posted 10/28/2009 4:57 AM (GMT -7)
Hi there,

Life expectancy in CF is a tough one. The life expectancy is given as a general average of when people with CF have died. So it's not a guarantee or a real expectancy. It's actually more given now a days as an advertising scheme. "Look a year ago life expectancy was 31, now with your help and support it's 35".

I've known people die at age 14, 20 and 26. I've also heard of people with CF in their 80's. I've met one person in their 60's on our unit and he's doing really well. I have many friends in their 40's.

CF is completely unpredictable, when it will strike. I've met people on the transplant list who've been given a year to live by doctors and 4 years on they're still alive and batteling waiting for transplant.

I can never understand what it must be like to be on the other side. Having CF, I've learnt plenty about life expectancy along the way. When I was born, the doctors told my mum, 2 years, then 5 years, then 12 years, then 21 years. I've beaten all of them, but now the expenctancy is moving even quicker, so I'm yet to reach 31, and it's already moved on to 35.
Expectancy is there in the back of my head and I tend to use it in arguments with people when they go down the "you not disabled" route or "I don't care if my smoking is effecting you" route. But there's no point worrying about it, for me anyway, as it's not a definate.

Hope this helps in someway, to ease some of your worries.
Gem
profile picture
MouseGirl
Regular Member
Joined : Oct 2009
Posts : 38
Posted 10/28/2009 9:36 AM (GMT -7)
Thank you a lot. That did help. I appreciate you answering my posts. =]
profile picture
timboy
New Member
Joined : Nov 2009
Posts : 18
Posted 11/6/2009 5:34 PM (GMT -7)
Man I hate that route. Pissin me off.
profile picture
MouseGirl
Regular Member
Joined : Oct 2009
Posts : 38
Posted 11/9/2009 10:44 AM (GMT -7)
What??
profile picture
timboy
New Member
Joined : Nov 2009
Posts : 18
Posted 11/9/2009 4:04 PM (GMT -7)
Darkies wrote:

"Expectancy is there in the back of my head and I tend to use it in arguments with people when they go down the "you not disabled" route or "I don't care if my smoking is effecting you" route. But there's no point worrying about it, for me anyway, as it's not a definate."

That route.
profile picture
MouseGirl
Regular Member
Joined : Oct 2009
Posts : 38
Posted 11/10/2009 10:41 AM (GMT -7)
oh. okay.
✚ New Topic ✚ Reply

More On Chronic Illness

Hypnotherapy In Medicine

Hypnotherapy In Medicine

Don't Let Stress Ruin Your Holidays: Some Stress Reduction Strategies

Don't Let Stress Ruin Your Holidays: Some Stress Reduction Strategies



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter InstagramInstagram PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.