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post op lung transplant

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Cystic Fibrosis
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Gisha
New Member
Joined : Dec 2009
Posts : 2
Posted 12/24/2009 8:02 AM (GMT -7)
My son is 3 months po lung transplant.  He has recently developed an infection which is being treated and is subsiding.  But he is also wheezing.  They feel it is from a narrowing of the airways which they have bronched and ballooned but he is still wheezing.  Has anyone else experienced and what was ultimately done. 
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Gemsi
Veteran Member
Joined : Feb 2007
Posts : 1050
Posted 12/25/2009 1:18 PM (GMT -7)
Definitely definitely get it checked out ASAP.

Post transplant, your son will be on anti-rejection drugs I'm guessing, which lower the immune system right down to nothing. Even a virus can be quite bad. Rejection is also a slight possibility if the anti-rejection drugs aren't quite effective enough.

I don't wish to worry you, but the first year after transplant, you have to be on alert that this is when things are most likely to screw up.

Hope you manage to get seen by someone, it's going to be difficult over the holidays, however usually consultants are on call over the holidays, and you may be able to reach them by phoning the main hospital reception.

Good luck
Gem
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Gisha
New Member
Joined : Dec 2009
Posts : 2
Posted 12/26/2009 1:57 PM (GMT -7)
Thank you for getting back to me.  There are no signs of rejection; he has been tested and is currently being treated by the transplant team.  They say the wheezing happens about 6% of the time.  I was trying to locate someone else who had this problem and what ultimately corrected the situattion.  Thanks
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