Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

MOM of a 19 year daughter with Cystic Fibrosis

Support Forums
>
Cystic Fibrosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
CFMOM
New Member
Joined : Nov 2004
Posts : 3
Posted 11/19/2004 2:38 PM (GMT -7)
Hello all, I would love to chat with other partents of adult Cf'ers. I would love to chat about treatments that the adults are using. My daughter is 19 and has been very healty up to now. Her PFTs went from 95% to 57%. Is this normal for this age?


My e-mail is DebbVfl@aol.com I will love to hear from all.



Thanks Debbie

Post Edited By Moderator (Admin) : 4/12/2005 1:17:56 PM (GMT-6)

profile picture
Lady Fox30
New Member
Joined : Jan 2005
Posts : 6
Posted 1/8/2005 12:02 AM (GMT -7)
CFMOM,
I'm not sure what the exact question is - there are many aspects of a PFT. There should be a 20% differance between her FEV1 and her FVC. My husband is a 28 year old CF pt that just received a 2 Lung transplant. The treatments he used when we first got married was based on a BID regamend of Colymycin (mixture), Albuteral (Intal), and Pumazine. He would occationally allow for CPT but they have a vest for that now. If you ask Respitory Theropist he/she would be better able to visit with you about it.
Hope this helped a little:)
profile picture
CFmomtoo
New Member
Joined : Mar 2005
Posts : 1
Posted 3/18/2005 11:10 AM (GMT -7)
I am the mother of a 26 year old daughter with CF.  I am also a respiratory therapist.  Your question about decreasing PFT's is a good one and I ran into the same situation.  What I can tell you is that as they reach adulthood their predicted values on pfts make a big change and then don't change so often.  This may be what you are experiencing.  Also to consider is was your daughter sick at the time of that PFT.  My daughter's PFT's dropped 20 percent in the last year.  At first they dropped by 40% but she was sick.  After a round of IV antibiotics they came back up by 20% and that is where they have stayed so it is now considered to be her baseline.  Does that help any?
✚ New Topic ✚ Reply




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.