MOM of a 19 year daughter with Cystic Fibrosis

Hello all, I would love to chat with other partents of adult Cf'ers. I would love to chat about treatments that the adults are using. My daughter is 19 and has been very healty up to now. Her PFTs went from 95% to 57%. Is this normal for this age?


My e-mail is DebbVfl@aol.com I will love to hear from all.



Thanks Debbie

Post Edited By Moderator (Admin) : 4/12/2005 1:17:56 PM (GMT-6)

I am the mother of a 26 year old daughter with CF.  I am also a respiratory therapist.  Your question about decreasing PFT's is a good one and I ran into the same situation.  What I can tell you is that as they reach adulthood their predicted values on pfts make a big change and then don't change so often.  This may be what you are experiencing.  Also to consider is was your daughter sick at the time of that PFT.  My daughter's PFT's dropped 20 percent in the last year.  At first they dropped by 40% but she was sick.  After a round of IV antibiotics they came back up by 20% and that is where they have stayed so it is now considered to be her baseline.  Does that help any?