I start DNase (Pulmozyme) on the 10th May. Nervous as hell as I'm not the best when it comes to nebulisers.
Just thought I'd quiz you all, about
what I might be expecting.
Is it likely to cause sore throats or anything? How likely are reactions to it? Do you find it helps declog your lungs?
I've been particularly clogged up recently, though have never been very productive. I can feel it all gooey sat on my chest and too much physio just hurts and tires me out far too much. I'm still so bitter about
the IV's not working.
I've just had a truely excellant holiday, did way too much and am paying for it. My chest wasn't too happy the whole time, and I was ordered to stop and rest several times, as I'd done my excercise trick of not breathing so I can concentrate on something else, then realising my lungs have an issue with that. Stupid things. Laughing to hard, sneezing, getting stressed-are all triggers right now.
Managed to avoid the cold that 3 members of our group came down with though, which was impressive considering we were all sharing a caravan and one of those three was my husband. Sometimes having an active infection does have advantages. I rarely get viruses mid infection-think the pseudo just kicks everything else out of the water.
Still not quite sure how I'm gonna do college this week either. I have to carry on, or I'm going to fail, and I can't fail as I just can't allow that.
Maybe this DNAse will do something? Or something might work.
Oh, anyone else on Adcal-D3 have you found it can mess with your Creon need? I seem to be completely off kilter with my belly and slightly altering my Creon with some foods is helping a bit. I just still haven't balanced it properly yet.
Pauls put a ban on my sugar intake, I'm only allowed 2 sugars in my coffee. I'm gonna cry if they find anything in all this blood sugar testing and try to change my diet. I don't want to lose weight. :(
I just still feel all over the place really.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.