It is very confusing, I get confused sometimes still and I've lived with it for 24 years!!
Yes, you are right, there is at present no cure for Cystic Fibrosis, they they are working hard to get one, it means basically changing the whole gene structure of your lungs and then also stopping it rejenerating those genes back in to CF ones.
CF effects almost everything, your lungs, liver, pancreas, van deferens and fallopian tubes. It is a faulty gene that screws up some doors that usually let chloride through. Because these doors don't work it means that mucus is thick and sticky clogging up everything that uses mucus. Very basic explanation there, about
It's crazy that lung transplant is listed as a cure. It's not a cure, as it 1) doesn't fix all of the other problems associated with CF and 2) It is true transplanted lungs wont carry the CF gene, meaning they won't have the fault that causes all the sticky infection breeding ground. However, like the gene therapy issues they have had with rejeneration of bad genes. This happens after transplant too. Your genetic code is still there working away, meaning the transplanted lungs genes will eventually be replaced by your own.
Transplant is only given as a last hope measure, when your own lungs are so weak they can hardley support themseleves anymore.
I hope this helps, I probably haven't put things in the best way but I think I've covered everything almost. Any more questions, do ask.
All the best
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, DNase Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.