Posted 6/22/2011 5:26 PM (GMT -7)
Hi Kate, I have CF and i turn 18 in 3 months!
I lived in a small town, but knew a girl a few years older than me with CF, she has it worse than me and still often goes into hospital. Which is something i have done since 2006, touch wood. We still run into each other at Clinics every 3 months and she's looking healthy.
A doctor told me i should get in contact with a 20 something year old lady in a town 3 hours from me to have someone to talk to, but for me, talking is the last thing i want to do, especially about CF. Makes it all seem to real when I'm living my life just the way i want. As a kid i never really took notice of having it, i did my nebs, took my tablets played sport it was all routine, then i became a teenager and shopping and boys all that stuff became 'important' and i started lacking in my treatment, and to be honest, i still havent picked up the slack! I miss nebs some weekends or when i just 'cant be bothered' i dont do it, bad attitude and i gotta change it. My boyfriends always on my back of a morning when i dont do it or asks if ive had my tablets (which i always do, dont want a sore tummy!) and my friends are really good about it too.
Basically you can live a perfectly normal life (just get up earlier than everyone else!), party, go out with friends, have sleepovers, have a boyfriend!
Just stay positive! Fight everything.