Well, after yet another sweat test, we have the difinitive answer and she definitely has CF! I have just been in tears! One minute I am fine, the next crying! We go back to the pulminologist on Monday to discuss a gameplan and how we are going to try to stay ahead of the game! Hopefully we can do that because like I said, so far, she has no symptoms and her lungs are clear. I spoke with a family friend last night whose son has CF and he is 33 and doing well. It made me feel a little better for a little bit! The social worker at the lung center told me yesterday that it is ok to cry but I feel like my husband is upset with me for crying! I can't help it!!! Now we also have to have our 3 year old daughter checked. Learning symptoms of CF, I am now getting scared that maybe she has it too! Difficulty gaining weight...she is 3 and 28 pounds! She tells us all the time that her tummy hurts but she loves going to her pediatrician's office (I used to work there and she loves everyone who works there and they spoil her and give her toys and pencils and all kinds of stuff) and so I never knew whether her tummy really hurt or if she just wanted to go! When she told me that she needed to go to the doctor because a monkey bit her...I knew that wasn't real! She is so funny! Now I am frightened though that things that we have just kind of shrugged off are signs that she has had CF this whole time!! The lung center gave us a book that my husband started reading when we got home. I can't even pick it up because there never seems to be anything positive or encouraging in anything I read online! I am just so scared!!!
Momma to LS