My grandson was diagnosed with CF at 3 weeks old, he is now 18 years old and graduated from High School last year, he has lived with myself and his grand father most of his life. Now that he is older we are having a terrible time getting him to do his tresatments, meds ect;. John Hopkins wanted to place him on the lung transplant list and he refused
, I am so worried and frustated I could just scream!!!!!!!!
I believ I need to find a chat room for him so he can have some one he can chat with about this terrible disease. He is always on the computer chating with his friends. I NEED SOME TYPE OF GUIDANCE PLEASE