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8yr old daughter geting a sweat test done

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Cystic Fibrosis
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shehasmyheart
New Member
Joined : Apr 2011
Posts : 2
Posted 4/28/2011 9:44 PM (GMT -7)
Hi everyone...I am not sure where to go or what to do I need advice form people with experiance so I came here.

My 8yr old daughter has been sick since NOV, she has had rattling/weezing, congestion and a presistent non productive cough ( the times that she has expelled mucous it has been thick a dark green). Anyways we have been tossed around from doctor to doctor, first it was a common cold, then possiably something lodged in her throat (umm ok), then it was asthma, then may be allergies , then asthma again....she has hand MANY MANY antibiotics (the good ones), breathing treatments , steroids, otc meds, x-rays etc. ALL OF THEM DID NOT WORK! We are now seeing a pedi pulmonlogist (sp?) he did a breathing test which was impossianle to get a reading due to all the gunk in her chest, he did an chest x-ray (mild inflammation of lungs) then he did a culture & sensitvity test, in which he made the diagnosis that she has Presistent Bacterial Bronchitis (sp?), in which she was given the antibiotic that was supposed to be sensitve to  , well again failure...Now she is on ZYVOX whic she has been taken for 3 days and as of yet I do not see any improvement, he has also ordered her to get a sweat test which she has on May 3rd, depending on the results of the test and if this new antibiotic works she may have to get inevanious antibiotics. Besides congestion and cough she has no other symptoms, she is a good eater and it shows wink   and I did the lick test on her arm and she thought I was CRAZY!, but i did not taste salt....so is she someone who would seem like they might have CF? her doctor did tell me he does not think she has it but wants to rule it out. Any feedback is welcomed thanks ahead

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Gemsi
Veteran Member
Joined : Feb 2007
Posts : 1050
Posted 4/29/2011 8:53 AM (GMT -7)
Hiya,

I couldn't possibly say. Such bad lung issues seem like it could be possible CF is causing this. There are some gene mutations that don't cause some of the other symptoms like pancreatic inefficiency so lung problems are the only CF related problems those people have. Has your daughter been tested for fungal infections like aspergillus? This can sometimes cause a condition called ABPA if it finds its way into the lungs and it can cause dark green sputum and plugged airways and inflammation, so it could be mistaken for bacterial infection. Have you tried a muscus thinning nebuliser like 0.9% saline or DNase? Whatever's harbouring on your daughters lungs will need to come up and there are certain medications that can get in and loosen mucus to make it easier to bring up. If it is something like ABPA then it could also loosen plugs of mucus and help give your daughters lungs a real clear out. This would help the antibiotics find ways to any infection too hopefully getting rid of infection quicker. I would also suggest plenty of fluids too, and this can sometimes help.

I hope it turns out your daughter doesn't have CF. I'm sure there are plenty of other things this could be that are more easily treatable.
All the best
Gem
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