Scared to death

My God Son is 4 months old and was diagnosed with CF at about 2 months old. He has been doing ok until lately. He was readmitted to Childrens Hospital in Oakland, CA because the antibiotics they had him on were not helping to clear up his sinus infection. His mother, my neice is 18 and handling this as best she can. She won't tell anyone how she really feels.(understandable) Can anyone tell me where I can find support for my neice, and the best medical help for my God Son? I am scared to death, and fell so F***** helpless. I want to do something, but don't know what I can do.