Posted 9/29/2011 3:06 AM (GMT -6)
Hi Maggie,
Both me and my brother have CF but there is no known history, noone else in our entire family (and we have a big family on both sides) has it. It was just a chance that both my mum and my dad carried the CF gene and that passed on to both of us (so much for the one in four chance if both parents are carriers!)
My mum tells me that on her side of family going back to great grandparents and further, there were a couple of unexplained young deaths. It would be interesting if we could find out the cause of them, as if they were lung or bowel related, that would fit in with CF. If not, it's just one of those chance things that my parents got together and had 2 cf babies.
Hope the testing goes ok, has your baby had the guthri heel prick test at birth?
Good luck
Gem