Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

trouble with care routine

Support Forums
>
Cystic Fibrosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
karebear08
New Member
Joined : Oct 2011
Posts : 1
Posted 10/10/2011 4:24 PM (GMT -8)
I have two boys (ages 3 and 18 months) that have both been diagnosed with atypical CF. They have both cultured positive for pseudomonus (sp?) and are sick often. My oldest seems to have the worst of it, and is sick frequently. Right now they both have pneumonia again. My youngest has been on the same care routine as my oldest for several months now. However, since they are both sick, their doctor has upped their routine to two different neb treatments for a total of 6 treatments a day, and their vest 4 times a day. My oldest is a champ and handles all the treatments really well. The youngest on the other hand turns into the incredible Hulk every time we have to sit down and do this. I have tried absolutely everything I can think of to keep him calm while we do his treatments. He thrashes, claws, screams... the whole nine yards. It's literally like alligator wrestling. I figured by now he would have gotten used to it, but that clearly is not the case. We've tried turning on his favorite show, reading, singing, coloring, playing with his favorite toys... the list goes on and on. I've even tried doing his neb treatments while he's sleeping, and that is a complete bust. I am at an absolute loss as to how to get him to calm down so his routine isn't a full on battle 10 times a day. It's exhausting for both of us.

Any advise or tips would be appreciated.

Post Edited (karebear08) : 10/10/2011 6:39:25 PM (GMT-6)

profile picture
sarabodwell
New Member
Joined : Jul 2012
Posts : 3
Posted 7/16/2012 10:31 AM (GMT -8)
it took me a long time to get used to my meds and accept them for what they do for me. im 28 years old now though so i must have figured it out. if you do everything you can to educate your boys about CF they will accept easier.
i hope that helps
✚ New Topic ✚ Reply


More On Chronic Illness

The Face Of Chronic Illness: Kelly

The Face Of Chronic Illness: Kelly

Expect The Unexpected: Coping With Life's Challenges

Expect The Unexpected: Coping With Life's Challenges


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.