I was wondering if there is any one on this forum who has been faced, either in the past or currently, with having to seek out a far away transplant center because the one closest to them no longer transplants patients who culture burkholderia cenocepacia. Currently I think only University of Pittsburgh does (where I have been evaluated, although I live in Boston), and Toronto, and maybe somewhere in California (san diego?) but I'm not sure.
Just looking to see if someone else out there is facing this and what their story is. thanks a lot!