WOW, 4 sons!! What an impressive achievement. (having any children is an achievement in my eyes. :))
I have heard lots of good things about Kalydeco, I'm glad you are one of the lucky few who it works for. It seems to be an amazing drug and very close to an actual genetic cure with how it works. :)
There has been a lot of problems for people getting Kalydeco in the UK. The NHS won't fund it, though Vertex is giving it for free on compassionate grounds for those on the lung transplant list. Those who are on it have reported great improvement. :)
Nice to meet you and and I do hope you continue posting with how your health is progressing with Kalydeco. It gives hope to those of us with DF508 as they are in the trials for making a version that treats more of us.
Gem :) x
Hey, I'm Gem with CF, age 25 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type thing.