Posted 6/6/2013 12:09 PM (GMT -6)
Yes, salty skin is a big indicator of CF. We sweat 100% more salt than the average person. I find salt actually crystallises on my skin, in summer it is like an exfoliant and maybe why I always have good skin and look young. That's even in British weather which is milder summers!! As kids my mum hated holding our hands if she had a cut on them as the salt from our skin you to sting.
You know I sometimes find myself wondering how this happens. If your child also has Cystic Fibrosis it will be the THIRD child I have heard of with both CF and Cerebral Palsy. That is a crazy coincidence I think. One of my friends also has the two conditions, because of the way he is, you would never tell he had CF as his CP is way more obvious.
I hoep you manage to get your daughters weight issues sorted and that the appointment goes well with the pulmonologist.
Hey, I'm Gem with CF, age 27 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy, Polyarthralgia.